What types of data are included in the EBIC database?
The EBIC database includes a wide range of data, such as:
- Neuroimaging data (e.g., structural MRI, resting-state fMRI, and DTI).
- Clinical data (e.g., demographic details, seizure history, and treatment outcomes).
- Standardized quality control metrics for imaging data.
Who can access the EBIC database?
Access to the EBIC database is restricted to authorized researchers and clinicians from participating sites and approved collaborators. All users must comply with EBIC’s data-sharing policies and ethical guidelines to ensure data privacy and confidentiality.
How is data quality controlled in the EBIC database?
Data quality control is conducted at multiple levels:
- During data collection: Standardized imaging protocols are used across all sites.
- During data submission: Quality control checks are performed to ensure data consistency and completeness.
- Post-submission: Automated and manual reviews validate imaging quality and flag any artifacts or inconsistencies.
How can new research centers join EBIC and contribute to the database?
Research centers interested in joining EBIC can contact the EBIC steering committee. After approval, they will be provided with training and resources to align with EBIC’s imaging protocols, data submission standards, and quality control requirements.
How does the EBIC database protect patient privacy?
The EBIC database follows strict data protection policies, including:
- De-identification of all patient data prior to submission.
- Secure data storage and access through encrypted platforms.
- Compliance with ethical standards and relevant legal regulations.
Can the EBIC database be used for international collaborations?
Yes, the EBIC database is designed to support international collaborations. Researchers from non-participating institutions can submit collaboration proposals to the EBIC steering committee for approval.
How does EBIC ensure data standardization across multiple sites?
EBIC implements standardized imaging protocols, data formats, and quality control workflows across all participating sites. Regular training sessions and audits are conducted to ensure compliance with these standards.
How can I cite data obtained from the EBIC database in publications?
Researchers using EBIC data must follow the citation guidelines provided by the EBIC steering committee. Proper acknowledgment of the consortium and contributing sites is required in all publications.
Are any atlases available for the data?
Yes, standard brain atlases, such as AAL or DK2009, are available and can be used with the imaging data. Access them from the EBIC resources page.
Does ENIGMA-Epilepsy provide matched PET-MR simultaneously acquired?
No, EBIC currently does not include simultaneously acquired PET-MR datasets. However, standalone PET and MRI data are available.
